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Links to other websites
This page contains links to web sites with information about the Hypermobility Syndrome and connected disorders - we have also included some general health links. If you have any sites that have been helpful or fun, please click here and let us know. Please note that we cannot be be held responsible for the accuracy of any information provided by these web sites.
We have grouped the links to make it easier for you. Just click on the category to go to the links:
- The Hypermobility Syndrome (HMS)
- Ehlers-Danlos Syndrome (EDS)
- Marfan Syndrome (MFS)
- Arthritis
- Fibromyalgia (FMS)
- Disability organisations
- Other useful sites
The Hypermobility Syndrome (HMS)
These links all provide information about the Hypermobility Syndrome. We have also included a link to the Hypermobility Bulletin Board and the address of an e-mailing list specifically for HMS sufferers.
- The Hypermobility Bulletin Board
- HMSNederland
- Arthritis Research Council - search using 'hypermobility'
- The Hyper-list - send an e-mail with the word 'subscribe' in the subject line and get into contact with others with HMS.
- Healthcentral Paediatrics Encyclopaedia - Hypermobile Joints
- Hypermobility Newsgroup
Ehlers-Danlos Syndrome (EDS)
These sites all provide information about the Ehlers-Danlos Syndromes. It is now thought likely that HMS and Hypermobile EDS are the same disorder, and we certainly suffer many similar problems - so these sites provide lots of relevant information! The Canadian Ehlers-Danos Syndrome association have a very active e-mailing list and details of this are also included.
- UK Ehlers-Danlos Support Group
- Ehlers-Danlos National Foundation (USA)
- Canadian Ehlers-Danlos Association
- National Ehlers-Danlos Association Norway/Norsk Forening for Ehlers-Danlos Syndrom
- Vanderbilt Clinic Medical Centre
- CEDA mailing list for kids under 15 with EDS - just send an e-mail and follow the subscription instructions!
- For CEDA monthly newsletter by e-mail - just send an e-mail and follow the subscription instructions!
Marfan Syndrome
These sites provide information and support to individuals diagnosed with Marfan Syndrome. One of the features of Marfan Syndrome is joint hypermobility.
- Marfan Association UK
- National Marfan Foundation
- Canadian Marfan Association
- Marfan Syndrome
- These Humble Hands - the Marfan Syndrome
- Jeanette Navia's Marfan Site
Arthritis
The following sites provide support and information to individuals diagnosed with arthritis and many provide useful tips on managing day to day living with painful joints.
- Arthritis Research Campaign (ARC)
- Arthritis Foundation (USA)
- About.com's Arthritis pages
- AMA Health Insight on Arthritis
- Arthritis Newsgroup
Fibromyalgia or FMS
Fibromyalgia is a condition which affects some people with HMS.
- UK Fibromyalgia Support
- Fibromyalgia Association USA
- Fibromyalgia Association of Greater Washington
- Information on Fibromyalgia
- Fibromyalgia Newsgroup
Disability organisations
These sites provide information about disability agencies and other groups which give support and information to disabled UK residents.
- NDF - National Disability Council (UK) - protecting the rights of the disabled
- Disabled Living Doundation (UK)
- Lots of disability weblinks!
Other useful sites
- Kids Health Kids/teens site with lots of health info
- LifeBytes Key stage 3 health site
- Mind, Body & Soul Key stage 4 health site
- Student Health
- Healthy Kids - health awareness site for kids and teens
- Bullying Online Website to support kids/teens who are experiencing bullying
- ChildLine
